Author Unknown
WHAT YOU SHOULD KNOW ABOUT ME
My pain is not your pain. Taking your arthritis medication will not help me. I cannot work my pain out or shake it off. It is not even a pain that stays put. Today it is in my shoulder, but tomorrow it may be in my foot or gone.
My pain is not well understood, but it is real.
My fatigue - I am not merely tired. I am often in a severe state of exhaustion. I may want to participate in physical activities, but I can't. Please do not take this personally; it isn't because I don't want to. I am, most likely, paying the price for stressing my muscles beyond their capability.
My forgetfulness - Those of us who suffer from it call it brain fog. I may not remember your name, but I do remember you. I may not remember what I promised to do for you, even though you told me just seconds ago. My problem has nothing to do with my age, but may be related to sleep deprivation caused by chronic pain. I do not have a selective memory. On some days, I just don't have any short-term memory at all.
My clumsiness - If I step on your toes or run into you five times in a crowd, I am not purposely targeting you. I do not have the muscle control for that. If you are behind me on the stairs, please be patient. These days, I take life and stairwells one step at a time.
My depression - Yes, there are days when I would rather stay in bed or in the house or die. I have lost count of how many patients suffered from Chronic Pain as well as other related illnesses. Severe, unrelenting pain can cause depression. Your sincere concern and understanding can pull me back from the brink. Your snide remarks can tip me over the edge.
My stress - My body does not handle stress well. If I have to give up my job, work part time, or handle my responsibilities from home, I'm not lazy. Everyday stresses make my symptoms worse and can incapacitate me completely.
My weight - I may be fat or I may be skinny. Either way, it is not by choice. My body is not your body. My ability to control my appetite is broken, and nobody can tell me how to fix it.
My need for therapy - If I get a massage every week, don't envy me. My massage is not your massage. Massaging out is very painful, but it had to be done. My body is knot-filled. If I can stand the pain, regular massage can help, at least temporarily.
My good days - If you see me smiling and functioning normally, don't assume I am well. I suffer from a chronic pain and fatigue illness with no cure. I can have my good days, weeks, or even months. In fact, the good days are what keep me going.
My uniqueness - Even those who suffer from chronic pain are not alike. That means I may not have all of the problems mentioned above. I do have pain above, below the waist, and on both sides of my body that has lasted for a very long time. I may have migraines, hip pain or shoulder pain, or knee pain, but I do not have exactly the same pain as anyone else.
Thank you for this very well written information and assesment of Fibro. I have had it for about 15 years. It is hard to explain all the things above when some days you can't even get a complete sentence out.
ReplyDeleteOne thing I can think of that wasn't mentioned, is touch. Even a gentle touch, not to mention a bump can and usually is painful.
This artical really helped explain fibromyalgia to my sister. Thank for putting to words my world.
ReplyDelete